Epilepsy Foundation raises $10,582 at their Bowl to END EPILEPSY Fundraiser

From the desk of Kennedy Lawton, Marketing, Communications + Special Events Coordinator for the Epilepsy Foundation of Northeastern New York.

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The Epilepsy Foundation of Northeastern New York held their 28th annual bowling fundraiser, Bowl to END EPILEPSY on Monday, June 10 at Spare Time – Latham, raising $10,582. This year brought over 150 bowlers!

The evening began as bowlers all over northeastern New York flocked to Spare Time to raise funds for the foundation and raise awareness for the estimated 45,000 living with epilepsy in the 22 counties the EF serves. Members of the Albany Empire, our areas leading arena football team, signed autographs and took photographs with adoring fans.

We thank our major sponsors for this year’s event which include Times Union, WVCR 88.3 The Saint, NeuroPace, Supernus Pharmaceuticals, Auto/Mate, Sonic of the Capital Region, and Greenwich Biosciences. All of the proceeds from the event are used to support the Epilepsy Foundation of Northeastern New York’s programs and services including educational programs, case management, advocacy, support networks and counseling.

The Epilepsy Foundation of Northeastern New York, Inc. is a non-profit organization which offers an array of services to people with epilepsy, their families and the community at large in 22 counties in northeastern New York, including the Capital Region, the North Country, and the Upper Hudson Valley.  To contact our office, please call (518) 456-7501 or visit www.epilepsy.com/northeastern-new-york.

Mark Your Calendars for the Bowl to End Epilepsy on June 10th

From the desk of Kennedy Lawton, Marketing, Communications + Special Events Coordinator for the Epilepsy Foundation of Northeastern New York.

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Please join The Epilepsy Foundation of Northeastern New York for an evening of bowling, pizza, refreshments and prizes at their Bowl to End Epilepsy event on Monday, June 10th at Sparetime Latham (375 Troy-Schenectady Road).

Trophies will be awarded to the top fundraisers:  Individual, Friends & Family Team and Company Team. An event t-shirt will be given to all bowlers who raise $50 or more!

There will also be as special appearance from members of the Albany Empire, Albany’s Indoor Arena Football League football team.

Check-in opens at 5:30pm and bowling begins at 6:00pm. There is no fee to bowl; however, registration is required to reserve your lane. Please register HERE.

Collect donations online HERE or in person to hand in at the event!

Questions?  Reply to this email or call Susan at (518) 456-7501. You can also view the brochure about Bowl to End Epilepsy HERE.

Join Us. Make a difference. End Epilepsy.

…“My name is Cathy Sheehy, andCathy Sheehy - Headshot I have epilepsy…I’ve never been comfortable with saying that out loud, let alone in front of people. I’m becoming more comfortable with my diagnosis after 30 years. Yes, it has taken me that long to get here. Here is my story.”…

Board Member of the Epilepsy Foundation of Northeastern New York, Cathy Sheehy, spoke yesterday at the Women’s Business Council event “If you Don’t Manage Your Chaos Your Chaos Will Manage You!” Cathy had the opportunity to share her story on behalf of the 2019 Adopted Non Profit, The Epilepsy Foundation. She is a perfect reminder that epilepsy can affect anyone with a brain and anyone with a brain can affect epilepsy.

The Epilepsy Foundation is gearing up for their summer/fall fundraising events. Sponsorship opportunities for both the Bowl to END EPILEPSY and Walk to END EPILEPSY are available. Contact Susan at skaczynski@epilepsyneny.org to continue the conversation.

Join Us. Make a difference. End epilepsy.

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Women Volunteers Rock!

April 7th marks the start of National Volunteer Week, and here at the WBC, we simply want to shout out all the incredible women in business who are also making a difference by volunteering in our community!

Global estimates put the count of volunteers worldwide at over 970 million, and considering the hours that they contribute, we are talking about the equivalent of over 125 million full-time workers!! According to numerous reports, around the world and in the U.S., more volunteering is undertaken by women than by men. In fact, a survey conducted by the Corporation for National and Community Service (CNCS) found that American volunteers tend to be female and married. The largest age group for volunteers was 35-44 and the volunteers surveyed were most likely to be parents with children under 18.

Think about that for a second — women with spouses and children to take care of are still volunteering more than most other groups of Americans. When you factor in the demands of jobs, kids, and other commitments, knowing that so many women still find time to give back to their communities is pretty awe-inspiring!

If you’re one of those female volunteers making a difference in the Capital Region, we’d love to hear more about how you’re involved and why you love it! If you’re looking for new ways to give back, consider one of these opportunities from our 2019 Adopted Nonprofit – The Epilepsy Foundation of Northeastern New York.

Here are some Epilepsy Foundation NENY opportunities:

Looking for a Few Good Men and Women to Join Our Walk to End Epilepsy Committee

  1. The Epilepsy Foundation will soon begin planning our 11th Annual Walk at Saratoga Spa State Park which will be held on Sunday, September 8th.  The “Walk to End Epilepsy” attracts over 500 participants annually.  Our volunteer committee meets once a month from April-September to plan for this event.  Volunteers are needed to secure raffle prizes, corporate sponsors and assist with day of logistics.  Our volunteers also help us spread the word to friends, colleagues and businesses to introduce new participants to the Walk.  The day includes lunch, children’s activities and much more!!  We are pleased to welcome our Event Partner, Fingerpaint, to our 2019 Walk to End Epilepsy.

To join the committee, or learn more, please contact Jeannine Garab, Executive Director, at (518)456-7501 or jgarab@epilepsyneny.org

2. Looking for a Few Good Men and Women to Join the Epilepsy Golf Tournament Committee

The Epilepsy Foundation will soon begin planning our Annual Epilepsy Golf Tournament which will be held on Monday, September 23rd at Wolferts Roost Country Club.  The Golf Tournament attracts over 150 participants annually.  Our unique format features fivesomes and nine Par 3 holes, each offering significant prizes including $10,000 cash.  Our volunteer committee meets once a month from April-September to plan for this event.  Volunteers recruit new fivesomes, secure raffle prizes, corporate sponsors and assist with day of logistics.  The event includes a premium giveaway, food and wine tastings on the course, silent and live auction, in addition to lunch, dinner and an awards reception.

To join the committee, or learn more, please contact Jeannine Garab, Executive Director, at (518)456-7501 or jgarab@epilepsyneny.org

RECAP: Epilepsy Foundation of Northeastern New York Confections in Chocolate Gala

From the desk of Kennedy Lawton, Marketing, Communications + Special Events Coordinator for the Epilepsy Foundation of Northeastern New York.

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The Epilepsy Foundation of Northeastern New York held their 31st Annual Confections in Chocolate Gala on March 9, 2019 at Glen Sanders Mansion. The Foundation hosted 265 guests as they honored Albany Med with the prestigious “Flame of Hope” award. The Epilepsy Foundation also introduced their 2019 Winning Kid, Madeline Bargy, of Delanson.

Nearly 20 different restaurants and bakeries donated their chocolate signature desserts to create an impressive display of over 1,300 desserts. From cannoli’s to truffle cakes, there was something for everyone. After dessert, guests danced the night away to the sounds of the Audiostars.  There was much to celebrate as the Foundation raised $74,000 to go towards the services they provide right here in our community.

The foundation would like to thank their top sponsors for making the event possible. Round of applause goes to KeyBank, Albany Med, The Massry Family and Sonic of the Capital Region. It was another successful year of Confections in Chocolate for the Epilepsy Foundation of Northeastern New York, and we thank everyone for their support.

How to Become “Seizure Smart”

From the desk of Kennedy Lawton, Marketing, Communications + Special Events Coordinator for the Epilepsy Foundation of Northeastern New York.

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The Epilepsy Foundation of Northeastern New York, an independent affiliate of the National Epilepsy Foundation, offers a variety of educational programs to teach professionals, students, and other community members about epilepsy and seizure recognition and first aid.

At the Epilepsy Foundation of Northeastern New York, we feel strongly that a “seizure smart” community is a safer, more inclusive and welcoming one; stigma around epilepsy exists to this day, and many people living with epilepsy do not feel comfortable disclosing their epilepsy to others for fear of being stigmatized.

People with epilepsy may face fear and apprehension from others, may be excluded from activities and even discriminated against (especially in the workplace) out of fear about what would happen if the person had a seizure. There are some people who may still hold beliefs that epilepsy is a spiritual affliction or punishment, rather than a neurological disease. But, if members of a community are educated on what epilepsy and seizures are and how to best help a person having a seizure, this can help mitigate any fear or misunderstanding that exists to help foster greater understanding, acceptance, safety and support for employees, coworkers, customers or consumers in a community who are affected by epilepsy.

Therefore, our agency would like YOU to invite us in to your business or workplace to provide education on epilepsy and seizures so that your business or workplace environment will be a “seizure smart” one. A representative or volunteer for the agency will come on-site to your workplace to offer free education.

Our education programs cover:

  • Epilepsy and seizures 101
  • Recognizing common seizure types
  • How to respond to seizures (first aid)
  • Identifying seizure emergencies (when to call 911)
  • Epilepsy treatments
  • Supporting a person with epilepsy

Partnering with Excelsior College during their annual Excelsior Cares Volunteer Week, our goal is to educate as many workplaces and businesses as we can during the week of April 8 – 12, 2019 so that Epilepsy Foundation staff and volunteers (faculty and staff) from Excelsior College may get the word out about epilepsy and make our professional community “seizure smart.”9

It is estimated that one in 26 people will develop epilepsy in their lifetime. It is estimated that one in 10 people will have a seizure in their lifetime. If you were with a coworker, employee, customer, consumer, etc. during a seizure, would you know what to do?

For more information about our education programs or to invite us into your workplace, please contact Erica at edenicola@epilepsyneny.org or 518-456-7501.