Join Us. Make a difference. End Epilepsy.

…“My name is Cathy Sheehy, andCathy Sheehy - Headshot I have epilepsy…I’ve never been comfortable with saying that out loud, let alone in front of people. I’m becoming more comfortable with my diagnosis after 30 years. Yes, it has taken me that long to get here. Here is my story.”…

Board Member of the Epilepsy Foundation of Northeastern New York, Cathy Sheehy, spoke yesterday at the Women’s Business Council event “If you Don’t Manage Your Chaos Your Chaos Will Manage You!” Cathy had the opportunity to share her story on behalf of the 2019 Adopted Non Profit, The Epilepsy Foundation. She is a perfect reminder that epilepsy can affect anyone with a brain and anyone with a brain can affect epilepsy.

The Epilepsy Foundation is gearing up for their summer/fall fundraising events. Sponsorship opportunities for both the Bowl to END EPILEPSY and Walk to END EPILEPSY are available. Contact Susan at skaczynski@epilepsyneny.org to continue the conversation.

Join Us. Make a difference. End epilepsy.

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Women Volunteers Rock!

April 7th marks the start of National Volunteer Week, and here at the WBC, we simply want to shout out all the incredible women in business who are also making a difference by volunteering in our community!

Global estimates put the count of volunteers worldwide at over 970 million, and considering the hours that they contribute, we are talking about the equivalent of over 125 million full-time workers!! According to numerous reports, around the world and in the U.S., more volunteering is undertaken by women than by men. In fact, a survey conducted by the Corporation for National and Community Service (CNCS) found that American volunteers tend to be female and married. The largest age group for volunteers was 35-44 and the volunteers surveyed were most likely to be parents with children under 18.

Think about that for a second — women with spouses and children to take care of are still volunteering more than most other groups of Americans. When you factor in the demands of jobs, kids, and other commitments, knowing that so many women still find time to give back to their communities is pretty awe-inspiring!

If you’re one of those female volunteers making a difference in the Capital Region, we’d love to hear more about how you’re involved and why you love it! If you’re looking for new ways to give back, consider one of these opportunities from our 2019 Adopted Nonprofit – The Epilepsy Foundation of Northeastern New York.

Here are some Epilepsy Foundation NENY opportunities:

Looking for a Few Good Men and Women to Join Our Walk to End Epilepsy Committee

  1. The Epilepsy Foundation will soon begin planning our 11th Annual Walk at Saratoga Spa State Park which will be held on Sunday, September 8th.  The “Walk to End Epilepsy” attracts over 500 participants annually.  Our volunteer committee meets once a month from April-September to plan for this event.  Volunteers are needed to secure raffle prizes, corporate sponsors and assist with day of logistics.  Our volunteers also help us spread the word to friends, colleagues and businesses to introduce new participants to the Walk.  The day includes lunch, children’s activities and much more!!  We are pleased to welcome our Event Partner, Fingerpaint, to our 2019 Walk to End Epilepsy.

To join the committee, or learn more, please contact Jeannine Garab, Executive Director, at (518)456-7501 or jgarab@epilepsyneny.org

2. Looking for a Few Good Men and Women to Join the Epilepsy Golf Tournament Committee

The Epilepsy Foundation will soon begin planning our Annual Epilepsy Golf Tournament which will be held on Monday, September 23rd at Wolferts Roost Country Club.  The Golf Tournament attracts over 150 participants annually.  Our unique format features fivesomes and nine Par 3 holes, each offering significant prizes including $10,000 cash.  Our volunteer committee meets once a month from April-September to plan for this event.  Volunteers recruit new fivesomes, secure raffle prizes, corporate sponsors and assist with day of logistics.  The event includes a premium giveaway, food and wine tastings on the course, silent and live auction, in addition to lunch, dinner and an awards reception.

To join the committee, or learn more, please contact Jeannine Garab, Executive Director, at (518)456-7501 or jgarab@epilepsyneny.org

RECAP: Epilepsy Foundation of Northeastern New York Confections in Chocolate Gala

From the desk of Kennedy Lawton, Marketing, Communications + Special Events Coordinator for the Epilepsy Foundation of Northeastern New York.

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The Epilepsy Foundation of Northeastern New York held their 31st Annual Confections in Chocolate Gala on March 9, 2019 at Glen Sanders Mansion. The Foundation hosted 265 guests as they honored Albany Med with the prestigious “Flame of Hope” award. The Epilepsy Foundation also introduced their 2019 Winning Kid, Madeline Bargy, of Delanson.

Nearly 20 different restaurants and bakeries donated their chocolate signature desserts to create an impressive display of over 1,300 desserts. From cannoli’s to truffle cakes, there was something for everyone. After dessert, guests danced the night away to the sounds of the Audiostars.  There was much to celebrate as the Foundation raised $74,000 to go towards the services they provide right here in our community.

The foundation would like to thank their top sponsors for making the event possible. Round of applause goes to KeyBank, Albany Med, The Massry Family and Sonic of the Capital Region. It was another successful year of Confections in Chocolate for the Epilepsy Foundation of Northeastern New York, and we thank everyone for their support.

How to Become “Seizure Smart”

From the desk of Kennedy Lawton, Marketing, Communications + Special Events Coordinator for the Epilepsy Foundation of Northeastern New York.

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The Epilepsy Foundation of Northeastern New York, an independent affiliate of the National Epilepsy Foundation, offers a variety of educational programs to teach professionals, students, and other community members about epilepsy and seizure recognition and first aid.

At the Epilepsy Foundation of Northeastern New York, we feel strongly that a “seizure smart” community is a safer, more inclusive and welcoming one; stigma around epilepsy exists to this day, and many people living with epilepsy do not feel comfortable disclosing their epilepsy to others for fear of being stigmatized.

People with epilepsy may face fear and apprehension from others, may be excluded from activities and even discriminated against (especially in the workplace) out of fear about what would happen if the person had a seizure. There are some people who may still hold beliefs that epilepsy is a spiritual affliction or punishment, rather than a neurological disease. But, if members of a community are educated on what epilepsy and seizures are and how to best help a person having a seizure, this can help mitigate any fear or misunderstanding that exists to help foster greater understanding, acceptance, safety and support for employees, coworkers, customers or consumers in a community who are affected by epilepsy.

Therefore, our agency would like YOU to invite us in to your business or workplace to provide education on epilepsy and seizures so that your business or workplace environment will be a “seizure smart” one. A representative or volunteer for the agency will come on-site to your workplace to offer free education.

Our education programs cover:

  • Epilepsy and seizures 101
  • Recognizing common seizure types
  • How to respond to seizures (first aid)
  • Identifying seizure emergencies (when to call 911)
  • Epilepsy treatments
  • Supporting a person with epilepsy

Partnering with Excelsior College during their annual Excelsior Cares Volunteer Week, our goal is to educate as many workplaces and businesses as we can during the week of April 8 – 12, 2019 so that Epilepsy Foundation staff and volunteers (faculty and staff) from Excelsior College may get the word out about epilepsy and make our professional community “seizure smart.”9

It is estimated that one in 26 people will develop epilepsy in their lifetime. It is estimated that one in 10 people will have a seizure in their lifetime. If you were with a coworker, employee, customer, consumer, etc. during a seizure, would you know what to do?

For more information about our education programs or to invite us into your workplace, please contact Erica at edenicola@epilepsyneny.org or 518-456-7501.

Confections in Chocolate Gala Gets Going

The Epilepsy Foundation of Northeastern New York’s 31st Annual Confections in Chocolate Gala will be held on Saturday, March 9, at Glen Sanders Mansion. Over the past five years, the event has hosted over 1,500 guests.

The Epilepsy Foundation of Northeastern New York will celebrate its 31st annual Chocolate fundraising gala form 5:30-11 p.m. on Saturday (3/9). This year’s theme is “The Enchanted Garden, Where Hope Grows.”

A highlight of the event is the arrangement of chocolate desserts donated by local executive and pastry chefs. There are over 10 different bakeries committed to bringing the Capital Region the best of the best chocolate desserts. They range from Chocolate Chip Bundt Cakes to Gluten Free Mousse Cakes. The black-tie-optional gala attracts more than 300 people annually and affords chefs an opportunity to showcase their talents.

Proceeds from the event are used to support the Epilepsy Foundation of Northeastern New York’s program and services including educational programs, advocacy, support networks and counseling. Tickets are available online here.

To contact the agency for more information about being a part of the chocolate dessert display, contact Kennedy at klawton@epilepsyneny.org

Epilepsy is a neurological disorder that affects one in fifty children and one in one hundred adults and is defined as having two or more recurring seizures; it can happen to anyone, at any age, at any time. Epilepsy is more common than Cerebral Palsy, Muscular Dystrophy, Multiple Sclerosis and Parkinson’s disease combined. Services provided by the Epilepsy Foundation of Northeastern New York include education and training of school personnel and students, public education and awareness, service coordination, advocacy, counseling and first aid training.

About the Epilepsy Foundation of Northeastern New York, Inc: We are a 501(c)(3) non-profit organization  that provides direct assistance to thousands of people with epilepsy each year in twenty-two counties across the  Capital Region, North Country, and the Upper Hudson Valley. Other services include public education and training, school education programs, service coordination, advocacy and counseling. Your support of the Foundation allows us to continue our important work on behalf of the more than 45,000 people affected by epilepsy in our area. www.epilepsy.com/northeastern-new-york.

New Board Members Announced for the Epilepsy Foundation of Northeastern New York

Catharine Potvin, of Slingerlands, is the Owner and President of Stragility, LLC. Catharine brings strong entrepreneurship and strategy development to the group. She will be of great assistance to their annual Golf Tournament as she plans to recruit more golfers to the event, including a team of female golfers. Melissa D’Andrea, of Saratoga, is a Sales and Account Executive with Currier, McCabe & Associates, Inc. Melissa brings sound interpersonal skills to the board, along with fundraising experience. The annual Walk to End Epilepsy will benefit greatly from her passionate drive. Both women are well-developed professionals and will assist the Foundation honorably.

The Epilepsy Foundation has a volunteer Board of Directors. Members have a variety of professional backgrounds. If you are interested in sharing your time and talents to further the mission of our organization, please complete a Board of Directors Membership Application and forward it with a copy of your resume to:

Jeannine Garab, Executive Director, Epilepsy Foundation of Northeastern New York, 3 Washington Square, Albany, NY 12205 or you may forward it electronically to: jgarab@epilepsyneny.org.

Board members are required to become members of the Foundation, attend regularly scheduled board meetings, support fundraising events and serve on 1-2 committees.

Farewell but not goodbye

With 2018 coming to a close, we say farewell to a fantastic year with our partner, the Adopted Non-profit, the YWCA of the Greater Capital Region.  

We will remember fondly, the mark Daquetta Jones made on the WBC, her work and all she does to advocate for women and we will remember the mission statement that we recited many times throughout the year:

YWCA of the Greater Capital Region, Inc. is dedicated to eliminating racism, empowering women and promoting peace, justice, freedom and dignity for all.

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We will not forget that the YWCA-GCR provides an affordable, safe and supportive transitional and permanent housing, food security services, homelessness prevention, and advocates for women’s rights, justice, and pay and racial equity.  

With your continued support, the YWCA-GCR will be able to continue to be a catalyst for positive change in this community.  

The YWCA encourages you to call anytime at (518) 274-7100 to volunteer.

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